
July 29, 2016
July 28, 2016
SkillsUSA Competitor Angelina Jorge Shares Her Fear of Missing Out

NSO student Angelina Jorge qualified to compete at the SkillsUSA's National Leadership and Skills Conference that was held in Louisville, Kentucky in late June. Read her insightful blog in which she expresses her disappointment in not being able to compete due to a scheduling conflict with her study abroad experience in Costa Rica.
July 05, 2016
NSO rallies to support 5K Walk
NSO rallies to support 5K Walk
By:
Drew DuBoff
On
Saturday, May 14th, friends, family and NSO members gathered for the
first annual Bravest Lauren 5K Walk to support Lauren, a young girl diagnosed with
two genetic conditions: Noonan Syndrome and Charcot-Marie-Tooth (CMT). Doctors
believe she is the first person born with these two conditions. For this reason,
friends, family and the Rhode Island community rally with her.
Noonan
Syndrome is caused by a gene mutation and results in short stature and
extremely low muscle tone. An estimated 2.8 million people worldwide have CMT,
a type of neuropathy where nerves are damaged. Lauren has CMT Type 1A. At age
9, Lauren’s feet began to turn under, making it hard for her to walk. She
underwent 2 surgeries this year to correct her feet, and as a result, she does
not walk with pain anymore. While there is no cure for either genetic condition,
the CMT Foundation indicates that there are drug tests in progress for CMT Type
1A.
Lauren
is 12 years old and loves the color pink, which is present on this year’s 5k Walk
t-shirt. “That’s why we’re wearing it,” she says. Lauren hopes to study Baking
& Pastry Arts at Johnson & Wales University in the future.
Her
mother, Jeanne Blanchette, is a member of the University Admissions team and
feels blessed and humbled that people are rallying with her daughter. It was
her sister and brother-in-law, MaryBeth and Dave, who initially came up with the
idea to help raise awareness. In the end, the idea transformed into a
fundraiser for Lauren.
Blanchette,
also an NSO advisor, saw the support of her JWU community, who attended the 5k
Walk. Blanchette’s friend and fellow NSO advisor, Sandra Cardoza, expresses
that she wants to help because “Lauren has such a great spirit. I like to help
people that help others.”
Blanchette
estimates that approximately 300 people attended the event, garnering $35,000
for future bills. As thunderous applause erupted when Lauren crossed the finish
line, people were incredibly inspired to witness a young girl putting up a
fight, one 5K at a time, and always with a smile on her face.
Contact:
jblanchette@jwu.edu
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